Maggie's

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Your profile and the records we keep

What records do we keep?

You can browse the groups, conversations, blogs, centre information and events pages without any record of your visit to Maggie's Online Centre. We will keep statistical information of what you view but it will never be traced to you.

If you choose to register a profile we will store your username, password and e-mail address on our secure database. Any information that you add to your profile will also be stored securely under your username. At no point will we use this information to identify you, contact you or pass your details onto a third party unless you give us reason to believe you, or someone you talk about, is at risk of significant harm. Want to know more? Read through our confidentiality policy.

If you join an Online Support Group a record of this will be added to your account so you can access the group. This is not publicly available and will be stored securely on our database.

How long can I use my profile?

Your profile will remain live for as long as you choose to use it. If you stop using your profile it will be deleted from the database after 2 years.

Access to records

Under the Data Protection Act 1998, you are entitled to see any records that are kept about you. Due to the anonymity of Maggie's Online Centre we need to be convinced that you are who you say you are. This is to protect you so that your information cannot be accessed by a third party.

Please send a personal message to the Online Manager if you wish to access your records and we will discuss the best way forward with you. As you are anonymous on Maggie's Online Centre, we will need specific details about your profile and use of the website, along with your name, address and date of birth before we can agree to giving you access to your record.

Once we are satisfied you are who you say you are, we will arrange for you to meet with a Maggie's representative to view the record.

Policy created: June 2008.
Policy reviewed: June 2009.
Review date: December 2009.


Registered Office: Maggie's, The Stables, Western General Hospital, Crewe Road, Edinburgh EH4 2XU   Registered Charity Number: SC024414
The Maggie Keswick Jencks Cancer Caring Centres Trust is a company limited by guarantee   Company Number: SC162451