Maggie's

See what's happening in the Community

You are not logged in.   Log In

Meet the team

As well as sharing experiences with our friendly online community, registered members are able to contact our experienced online team. The Centre is staffed during office hours and the online team aim to reply within 24 hours.

Psychologists and experts from other Maggie's Centres and partner organisations also facilitate some group and individual sessions.

Picture of 'Today I am feeling' - managing emotions

Topic

'Today I am feeling' - managing emotions

Share how you are feeling and swap tips for managing stress with other members and the online team

  • 155 conversations

Duodenal cancer

Started by Anonymous on 10 April 2017 at 17:38

Hi All, My husband has duodenal cancer, mets to liver. First symptoms started in November 16. He's having a hard time. On 2nd cycle of chemo but as in first cycle he was hospitalised and chemo stopped midway despite it having been reduced. I find it difficult to stay upbeat, tho he is very accepting of his condition and easy to be with. I want to do the best for him- but don't know what that is some of the time. We're seeing oncologist on Wednesday and my husband thinking of suggesting coming off chemo completely. That fills me with terror as I'd feel we've given up all hope. Has anyone been in this situation , and if so, any words of wisdom ? Thank you

Comments (2)

latest | oldest

Displaying 2 comments

  • From Anonymous
    14 April 2017 at 17:54

    Thankfully oncologist persuaded my husband to have 3rd cycle of ECX chemo, which he had today. This has to be followed up with a scan in the next week or so, to see if reaction to chemo has been positive. On 21 days of capecitabine orally, now. Just hoping he can get through this cycle without any disruption!! Has also been given a course of steroids to try to improve his energy levels. Fingers crossed !


  • Picture of SusieQ
    From SusieQ  
    11 April 2017 at 09:35

    Hello,

    This is an emotionally painful time for you - it can feel like trying to paddle to safety with no specific compass. The role of partner/carer is sometimes even harder than it is for the person with cancer. Events may feel to be happening which you have no control over...

    Your husband has given chemo his best shot - and it may be that the oncologists themselves suggest a break, or a further reduction in chemo strength.

    I sense you'll support your husband whatever his decision will be - as scary and upsetting as it might feel. The oncologists will listen to him and work with him, on what the best decision for him is.

    It's not giving up hope - it's more about redefining what hope might mean now. He possibly feels he'd like some quality of life now, over quantity, if the chemotherapy is making him so ill. If he does stop the chemotherapy, then it's important to find out how the oncology team might support him moving forwards. Are there any other treatment options, or clincial trials he's eligible for. If it's time to have a break from active treatment, then working out what support you and he can have.

    Has he a specialist nurse assigned to him, perhaps he could do with a referral to one based in the community (often known as Macmillan nurse)? She/he would be able to support him, symptom wise, and and you both psychologically.

    There are other online members here, who are experiencing what you are going through - and hopefully will be in touch,

    If you live near one of our Maggie's Centres, you'd be welcome to drop in and talk through how you're feeling, with others who understand what you're going through. You can also message Robyn or myself at any point if you'd like to talk about something in more detail...

    Thinking of you both for tomorrow's appointment,

    Warm wishes

    Sue

     

     


Displaying 2 comments


Registered Office: Maggie's, The Stables, Western General Hospital, Crewe Road, Edinburgh EH4 2XU   Registered Charity Number: SC024414
The Maggie Keswick Jencks Cancer Caring Centres Trust is a company limited by guarantee   Company Number: SC162451