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As well as sharing experiences with our friendly online community, registered members are able to contact our experienced online team. The Centre is staffed during office hours and the online team aim to reply within 24 hours.

Psychologists and experts from other Maggie's Centres and partner organisations also facilitate some group and individual sessions.

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Topic Kitchen table (general chat)

General conversations to join in and talk with other members and the Online team

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Finding your online feet.

Started by Robyn   on 22 December 2011 at 15:13
Edited on 14 September 2018 at 12:01

 Welcome to Maggie's Online Centre,You can browse and read a selection of our content online.

However, as part of the development of our online support we have now suspended new registrations to our Online Centre until we launch our new website this Winter.

You are welcome to drop into any of our Centres across the UK Mon-Fri (9-5) 

If you are unable to find/visit  a Centre near you, and are in need of support, please contact our General enquiries:  enquiries@maggiescentres.org  and they will ask a member of our professional teams to help you. 

Our cancer information website Maggie’s CancerLinks is also available 

For urgent/medical enquiries please consult your GP or hospital teams

For existing members of Maggie’s Online centre profiles  should work as normal.  If you are having difficulty logging in please contact us by emailing : Feedback@Maggiescentres.org

If you would like to receive occasional e-newsletters   with information about our online developments  and the launch of our new website  please sign up here  for the Online Centre newsletter. You can do this by clicking on the link on the main photography on the Online Centre page of our main website.

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Comments (16)

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Displaying 1-10 of 16 comments

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  • Picture of SusieQ
    From SusieQ  
    15 November 2017 at 15:35
    Edited on: 15 November 2017 at 15:36

    Hello,

    Today's news would have been hard for anyone to hear - and you're understandably shocked and upset. Even the strongest person struggles emotionally when given a cancer diagnosis - so please be kind to yourself.

    Everything may feel bewildering at the moment - and it will take some time for the news to be absorbed. Have you anyone at home for support?  Ironically, this initial panic will ease...often when a treatment plan is determined, and you know more about what you're dealing with.

    You may find my blog 'How to cope with a new cancer diagnosis' a helpful read at some point. It gives some helpful tips on how to manage the next few weeks whilst you adjust to what is happening.

    If you live near one of our Maggie's Centres, you'd be welcome to drop in and talk with one of the team about what is going on for you. In the meantime, I'll drop you a line and introduce myself - you can message Robyn or myself anytime for support.

    Warm wishes

    Sue

    Cancer support specialist


  • From Anonymous
    15 November 2017 at 13:58

    A few hours ago I was told I have cancer in my throats and base of tongue. Have to go for CT scan and ultrasound so they know how to treat it. I'm a mess I can't stop crying I'm usually such a strong person but this has broken me.


  • Picture of SusieQ
    From SusieQ  
    21 April 2017 at 10:52

    Hello Diane,

    It sounds like the news of your triple negative cancer has been a shock...especially as you'd been getting on with your treatment thinking there would be hormone therapy and herceptin to follow.

    The breast cancer tumour sounds to be responding (shrinking) to the chemotherapy - and there are a range of chemotherapies that are available for breast, if it should come back.

    That doesn't take away the fear though - I understand that. The fear of recurrence is something that most people with a cancer diagnosis struggle with. It's the feeling of an uncertain future - something you may feel you have no control over, that can feel overwhelming.

    However - there are things you can be doing to take some control back. Exercise (only gently whilst you're on chemo, then building up over time), good nutrition, learning how to relax, and de-stress, keeping an eye on current and new treatments - and hearing from others who have got through this difficult part of cancer treatment. If you live near near of our Maggie's Centres, you'd be welcome to drop in, and find out more about strategies to cope.

    You may find this webpage from Cancer.Net helpful - 'coping with fear of recurrence'? Also a good book, that many of our members recommend, is 'The cancer survivor's companion : practical ways to cope with your feelings after cancer' (Goodhart and Atkins, 2013). Although I havent read the following book myself, it is well reviewed, and might help too - 'Surviving triple negative breast cancer: hope. treatment and recovery' (Patricia Prijatel, 2012).

    Some of how you feel, may be being impacted upon by your chemotherapy - it affects people both physically and emotionally - more time on your hands to think, feeling fatigued, and perhaps more vulnerable.

    Others on here will identify with the feelings you've expressed today...so hopefully will add their thoughts too..

    You're very welcome to get in touch with Robyn or myself too - writing down the feelings and worries can ease the immediacy of the worries...

    Warm wishes

    Sue

     


  • From Anonymous
    21 April 2017 at 10:22

    I am half way through FEC-T treatment for Grade 3 Triple Negative Breast Cancer, about to start the last three cycles then move onto surgery for lumpectomy and removal of lymph node(s) and radiotherapy.  I had tests this week which determined the tumour had shrunk by atleast 3/4 and was smaller in the node and I should be really positive about it.  I did'nt realise I was triple negative until I asked this week if I was going to have Tamoxifen or Herceptin post treatment, it had'nt really been spelt out to me.  While I should be positive, I am now terribly frightened for the future that its going to come back even if I get through the treatment with a positive outcome.  Any advice on how to manage my fears would be greatly appreciated.

     

    Thanks, Diane


  • Picture of SusieQ
    From SusieQ  
    18 April 2017 at 09:54

    Hello Myra,

    It sounds like there's a lot going on for you, emotionally and practically at the moment. Your husband's chemotherapy, as well as the worries you may have about his cancer, may be adding to a sense of feeling helpless. Things are happening which can sometimes feel out of your control...and this can lead to feeling scared and panicky. The feeling of being on your own in this, is something many of our online members tell us. (There is a blog you might identify with...'cancer, loneliness and isolation', as the feeling of isolation can affect both the person with cancer, and those close to them).

    It's still early days in your husband's treatment, by the sound of things, and the new temporary routines can feel a challenge - not knowing what to expect, and wondering if the treatment will work.

    I'm relieved to see that you are planning to drop into your local Maggie's Centre, when he goes for his second chemo cycle.

    There will fellow wives, husbands and partners reading this, who will identify strongly with what you're saying...I hope they'll add an encouraging word here for you...

    In the meantime, I'll message you...

    Warm wishes

    Sue


  • From Anonymous
    17 April 2017 at 08:49

    My name is Myra normally I can cope but right now I am frightened all the time . Problems sleeping and I feel so alone. Not so bad if I am out and about and people round about me. Dont live near the Maggie but do intend to visit when my husband is there for his second chemo treatment. 


  • From Anonymous
    29 October 2016 at 10:29

    Hi, I'm back to Maggies after 18 months.  We thought my husbands cancer had gone, but sadly we've recently found out its spread.  We were told people typically live 6 months with this type of cancer so we're trying to make the most of the time we have left together.  He's now having palliative chemo so it's not as easy to get out, but we're hoping to still have a few adventures.  

     


  • Picture of Robyn
    From Robyn  
    13 August 2016 at 08:27

    Hello - dont worry I was passing by this morning and sorted it so the post is back :)

     Robyn


  • From Anonymous
    13 August 2016 at 00:19

    I'm really sorry. I only just joined and somehow seem to have made a complaint about a post when I thought I was clicking on it to read it in full. I tried to get out of the complaint, but I got a window saying thanks for alerting to the content, it had been removed. This wasn't at all what I wanted, and I still don't know how I did it.


  • Picture of Robyn
    From Robyn  
    20 May 2016 at 17:09
    Edited on: 20 May 2016 at 17:10

    Hello, support is available from Maggie's  for carers as well as people who have cancer. I sent you a private message earlier today you may not have seen it yet - it will explain a bit more about the support avialable here at Maggie's Online Centre. When you are logged in the message should show on your dasnboard. The online team are now off for the weekend and will reply to any messages on Monday.

    Best wishes

    Robyn


Displaying 1-10 of 16 comments

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