Maggie's

See what's happening in the Community

You are not logged in.   Log In

Meet the team

As well as sharing experiences with our friendly online community, registered members are able to contact our experienced online team. The Centre is staffed during office hours and the online team aim to reply within 24 hours.

Psychologists and experts from other Maggie's Centres and partner organisations also facilitate some group and individual sessions.

Picture of Topic  'Today I am feeling' - managing emotions

Topic

Topic 'Today I am feeling' - managing emotions

Share how you are feeling and swap tips for managing stress with other members and the online team

  • 186 conversations

portal vein embolization help !

Started by Anonymous on 26 March 2016 at 21:05

Hello

my mum has had a portal vein embolization 6 weeks ago with the hope of an operation to take away the bile duct / gallbladder cancer she has been diagnosed with. She is really poorly at the moment and has been unable to eat / keep anything down for almost a week. I took her to A&E and she has spent a couple of days in hospital, but they say there is nothing more they can give her at the moment, until the operation.

I wonder if there is anyone who knows what I can do to help her eat / or how they feel after having this procedure. She has been given food suplement drinks, but struggling to keep these down too. I am so worried about her, any help would be appreciated. 

Thank you 

 

Michelle 

Comments (4)

latest | oldest

Displaying 4 comments

  • From Anonymous
    29 March 2016 at 14:23

    Thank you Sue


  • Picture of SusieQ
    From SusieQ  
    29 March 2016 at 14:09

    It is difficult when there seems to be a key link person to get in touch with at the hospital. It would perhaps be useful to discuss your concerns with your mum's GP, as he/she may be able to access some information for you.

    It sounds as though you could do with some support too - it's emotionally painful to see someone we care about being so unwell, and can create a feeling of helplessness. If you live near one of our Maggie's Centres, do feel free to drop in and talk through with people who understand how things are, for you and your mum.

    I'll message you so we can talk some more 'behind the scenes' as it were.

    Warm wishes

    Sue


  • From Anonymous
    29 March 2016 at 13:23

    Hello Sue,

    Thank you for replying - Unfortunatly we have no been allocated a specailist nurse as I understand that she is on maternity leave with no cover, so we are completly in the dark. Its frustrating and scary to have no one to contact who can help. I have spoken with Caroline and she recommended smoothies which I am trying to get her to have.

    Michelle x


  • Picture of SusieQ
    From SusieQ  
    29 March 2016 at 13:15
    Edited on: 29 March 2016 at 13:16

    Hello,

    This sounds a worrying time for both you and your mum. Portal Vein Embolisation (PVE) is the blocking off part of the blood flow to the area of liver that has the cancer. This helps shrink the the area which may be affected as part of the bile duct cancer...in preparation for surgery, usually a few weeks later ( see Cancer Research UK 'Surgery to completely remove bile duct cancer').

    I have heard that fatigue, nausea, etc can be part of the side effects felt after this procedure. The hospital would have been checking for signs of infection, fever, or liver problems when she was in hospital recently.

    If your mum has a specialist hepato-biliary cancer nurse assigned to her, perhaps you could telephone her, and seek some clarification about what you can do now to best help your mum...she maybe could do with a dietician referral. It takes alot of calories to help regenerate a liver, and that could be contributing to her extreme exhaustion. It also takes effort to eat whilst feeling nauseous. She may also be feeling understandably anxious, and adjusting to her cancer diagnosis...which in itself can impact on mood and appetite.

    If you haven't already contacted CarolineH (our expert nutritional advisor online)...I'd encourage you to do so, as she may have some helpful suggestions to increase your mum's calorie intake.

    If she's still nauseous...it sounds as though she could do with a review of any anti-nausea drugs she's on, as she could do with something that it more effective?

    You both may be concerned that it is the cancer itself that is contributing to her symptoms, so this is something you could seek advice/reassurance from via the special nurse, GP or hospital team.

    In the meantime, you are very welcome to message Robyn or myself for support, encouragement, and a place to be heard.

    Warm wishes

    Sue


Displaying 4 comments


Registered Office: Maggie's, The Stables, Western General Hospital, Crewe Road, Edinburgh EH4 2XU   Registered Charity Number: SC024414
The Maggie Keswick Jencks Cancer Caring Centres Trust is a company limited by guarantee   Company Number: SC162451