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As well as sharing experiences with our friendly online community, registered members are able to contact our experienced online team. The Centre is staffed during office hours and the online team aim to reply within 24 hours.

Psychologists and experts from other Maggie's Centres and partner organisations also facilitate some group and individual sessions.

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Topic

Topic Newly diagnosed

Are you newly diagnosed with cancer? Read our series of blogs with information about cancer and its treatment, how to take control of its side effects and tips to help you to focus on wellbeing.

  • 87 conversations

What happens now?

Started by Anonymous on 25 January 2017 at 11:29

Hi, I've just been diagnosed with pancreatic cancer. I've not seen the consultant yet, that's tomorrow, yesterday I had another scan, on my chest, as the first was only my abdomen. The abdomen showed no spread. I've done what most people do and googled pancreatic cancer, and it's terrified me. My family are understandably distraught, and I don't feel able to discuss the possible prognosis. I know I don't know how advanced it is yet, but the prognosis in all aspects is poor, and I need to be able to talk about this, but don't want to upset them more. How do I cope with this? I feel so alone.

Comments (1)

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  • Picture of SusieQ
    From SusieQ  
    25 January 2017 at 12:17
    Edited on: 25 January 2017 at 12:18

    Hello,

    The news of your diagnosis sounds a huge shock, and your mind may feel full of unanswered questions, and anxieties. These first few weeks are often the worst, before you have a treatment plan, and have a clearer idea about what is going on.

    We have many people contact us at this point...when thrown into the cancer world...without a compass, or safety net, to start with. You may find my blog, 'How to cope with a new cancer diagnosis' a good start to working out how to get through this initial period.

    You have probably found out good and bad information on the internet. We have a section on Pancreatic cancer, in Maggie's Cancerlinks, which will guide you to the most up to date information to read.

    There is also a good deal of support from Pancreatic Cancer UK who also have an online community which may help answer questions and help you feel less alone.

    Carrying the news of your diagnosis, and not feeling able to discuss it with those closest to you, can add to the sense of isolation. You may find they have also been 'googling' and are aware of what might be discussed tomorrow. If you're able, it can help alot to have a family member or friend with you, to be an extra 'set of ears' in the consultation.

    You are very welcome to talk about how you're feeling, either here in a conversation post, or with Robyn or myself by personal message (which are confidential)...and that can give a sense of release...

    You asked how you can cope with this - a good question. Taking things slowly, working through issues a day at a time, can help. The enormity of the situation, may feel overwhelming in it's entirety, so start small. Think about what the consultant may be saying tomorrow, and jot some key questions down to ask. You should be introduced to a specialist cancer nurse who deals with pancreatic cancer, and she/he will your be ally through this.

    May I wish you good luck for tomorrow - it is encouraging that the abdominal tests have shown no spread. Don't hesitate to get in touch - and you can talk through any of your concerns, and feelings....

    Warm wishes

    Sue


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