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As well as sharing experiences with our friendly online community, registered members are able to contact our experienced online team. The Centre is staffed during office hours and the online team aim to reply within 24 hours.

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Topic Newly diagnosed

Are you newly diagnosed with cancer? Read our series of blogs with information about cancer and its treatment, how to take control of its side effects and tips to help you to focus on wellbeing.

  • 87 conversations

Advice needed

Started by Anonymous on 22 January 2018 at 22:36

Hi, I was diagnosed just before Christmas & 10 days later I had surgery to remove part of my colon. The CT scan prior to my surgery showed that there was also a small something on my liver(it would now appear that there is also a second tiny something on the same part of my liver. I’ve been told that I’ll need chemo & then a liver resection. Today I had a PET scan. It turns out that 32 out of the 37 lymph nodes removed were affected. That seems like a lot to me! Now I’m in a position where I have no clue what’s going on. My colon surgeon has referred me to an oncologist but I’ve heard absolutely nothing from them & it’s beginning to get me quite stressed. I’m 3&1/2 weeks post op, just finished antibiotics for an infection in my main wound & was in hospital for 11 days as opposed to the predicted 5 due to complications both during the op & during recovery. I have 2 young children. Getting my head round all of this on top of not knowing what is going on is causing a lot of stress & sleepless nights. Any tips on how to deal with this or what I should do next? Many thanks.

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  • From Anonymous
    26 January 2018 at 10:04

    Hi Robyn, Thanks for this - have sent you a message. many thanks, Jody


  • Picture of Robyn
    From Robyn  
    23 January 2018 at 11:46

    Hello, it’s understandable that you are having difficulty getting your head round everything. It’s a lot to take in especially with the complications with your wound - to say nothing of fitting everything around young children!

    Following surgery your wound needs to heal completely before having chemo so, I worked as a specialist nurse in hosptals for many years  and  would guess from the hospital admin point of view they may be seeing others, in the post Christmas catch-up, knowing that your treatment isn’t due to start yet.

    They have however been continuing investigations – and now the results of the scan are available they will be able to decide the best treatments to offer you when you see the oncologist.

    So, although it feels as if you are behind it sounds as if all is running to time.

    The trouble with this is, that if you don’t know this, then you feel worried and forgotten.

    I would give the hospital a ring and let them know you haven’t received an appointment date just in case a letter has gone astray somewhere.

    Waiting for treatment decision’s is often a really tough time – once you have an appointment date and see the oncologist you will know more about the treatments available and be able to plan round them more which can help give you back some structure and routines etc day to day .

    As i wrote above it is a lot to take in – you are welcome to drop into any of our centres or to message me or Sue (susieq) anytime if you want to talk in more detail.

    Best wishes
    Robyn


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