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Picture of Topic  'Today I am feeling' - managing emotions

Topic

Topic 'Today I am feeling' - managing emotions

Share how you are feeling and swap tips for managing stress with other members and the online team

  • 186 conversations

Waiting

Started by Anonymous on 25 September 2016 at 10:10

I will start by apologising if this is a bit long winded.

I had a biopsy on the first of July. A week later the consultant explained to me that I had prostate cancer. Two weeks later without any further tests he informed me that it was advanced prostate cancer and it was incurable. Six weeks later I met with the oncologist who informed me that chemo was my only option but I would need a CT scan first to see if there was any further spread. After waiting three weeks and hearing nothing at all I phoned his office where his secretary told me I was on the waiting list for a scan. 

My question is, are these time scales normal? I feel like they have washed their hands of me.

Comments (1)

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  • Picture of SusieQ
    From SusieQ  
    26 September 2016 at 10:16

    Hello,

    My first instinct when reading your conversation post this morning, is that you definitely need some clarity on your situation. It does sound a long time to wait for an C/T scan, and you could also do with a much more detailed explanation about the biopsy findings, and how the conclusion that your prostate cancer is advanced, has been reached.

    I'm aware that it's usually a month to six weeks following a biopsy before a scan can give an accurate picture of what is happening around the prostate itself, as there is usually some internal bruising following a biopsy, which has to settle.

    According to NHS Choices website it states that 'In cases where cancer has been confirmed, you shouldn't have to wait more than 31 days from the decision to treat to the start of treatment.' I'm assuming the scan is to determine what the treatment should be. Whilst even advanced prostate cancer may be growing slowly, it's the psychological impact of waiting, which adds to the stress of the diagnosis.

    As part of your 'patient pathway' you should have been designated a specialist uro-oncology/prostate cancer specialist nurse. She or he would then be a good person to contact to follow up what is going on for you. If you dont recall meeting the specialist nurse, it would be worth phoning the consultant's secretary, and saying that you'd like to speak with the specialist nurse for your particular cancer. You can then explain your concerns, and see if she/he can chase things up for you.

    Alternatively, contact your GP, and say that the stress of waiting is causing you significant anxiety - and see if he/she could find out more for you. they should also be able to explain how the doctors have established your cancer is more advanced.

    I can understand why you may be feeling ignored currently, so I would be chasing things up today...

    In the meantime, please do message myself or Robyn if you'd like to talk anything through..you've a great deal going on...

    Warm wishes

    Sue

     


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