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As well as sharing experiences with our friendly online community, registered members are able to contact our experienced online team. The Centre is staffed during office hours and the online team aim to reply within 24 hours.

Psychologists and experts from other Maggie's Centres and partner organisations also facilitate some group and individual sessions.

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Topic Newly diagnosed

Are you newly diagnosed with cancer? Read our series of blogs with information about cancer and its treatment, how to take control of its side effects and tips to help you to focus on wellbeing.

  • 87 conversations

Help please lung cancer diagnosis

Started by Anonymous on 26 March 2018 at 13:51

My husband has been diagnosed with stage 4 terminal lung cancer.  The tumour is inoperable and he has been given a prognosis of without treatment, he has between 1 month and 12 months to live.  With treatment (chemo) he has a chance to prolong his life but no cure.  My concern is we received a letter for his pre-med of 12th April with treatment sometime after that.  It feels too far away for someone in my husband's position.  We have tried contacting chemo unit but keep getting the message that there is no-one to take our call.  We have no contact numbers to seek help from. The most we were given on diagnosis was a few Macmillan leaflets.  We feel abandoned, I don' t know where to turn.  He is very breathless at the moment and is feeling unwell.  He feels at the moment he won't make it to chemo.  We have no where to turn for help. Any advice would be appreciated

 

Comments (2)

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  • Picture of Tombenefits
    From Tombenefits  
    29 March 2018 at 11:46

    Hello,

    I'm Tom, the Online Centre Benefits Adviser.

    These early days after such a hard diagnosis must be full of tenterhooks anxiety and concern, especially if your husband is feeling more breathless and unwell. 

    Hopefully you can make some progress in getting matters reviewed, and best ways forward, along with some attention to ease things right now. 

    If at any point you have any headspace to want to look at financial support available in these situations, please don't hesitate to message me. 

    There are fastrack routes into extra help, some of which is available to all, some of which may depend on other income and savings.

    Of course that may feel like the least of your worries right now, but just to let you know that support is available as and when you might wish to explore that.

    Best wishes,

    Tom


  • Picture of Robyn
    From Robyn  
    26 March 2018 at 14:57

    Hello

    I can imagine it is very scary for both you and your husband just now. it sounds as if his condition has worsened and with a long bank holiday approaching it is wise to seek an appointment earlier.
    If your husband was given the number for a specialist nurse at the hospital try phoning them, if no joy there then ask to speak to the consultant or a Dr from the consultants team. Tell them your husband was diagnosed recently and that his breathing is worse and he is feeling unwell unwell they may then ask to see him sooner.

    Another option is to ask for an appointment with your husbands GP today and ask them to contact the hospital on your behalf. It sounds as if your husband needs to see someone today so be firm and insist he is seen.
    I’ll send you a private message to talk through some additional support but for now the important thing is that your husband is checked over
    Best wishes
    Robyn


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