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As well as sharing experiences with our friendly online community, registered members are able to contact our experienced online team. The Centre is staffed during office hours and the online team aim to reply within 24 hours.

Psychologists and experts from other Maggie's Centres and partner organisations also facilitate some group and individual sessions.

Picture of Topic Friends and family


Topic Friends and family

For anyone supporting someone else with cancer

  • 156 conversations

Chemo starting - bracing ourselves!

Started by Anonymous on 17 September 2016 at 10:57

Hi everyone,

I'm a newbie :( , my beautiful husband was diagnosed with oesophagal cancer a few weeks ago, he's stage 3 but localised spread only at the moment but over the last four weeks has gone from difficulty swallowing to not being able to even get a cup of coffee down.

They have fitted a PEG tube which helps (physically at least, psychologically its a massive struggle for him) but he has lost 3 stone so far and its continuing to come off. Now he was a big man so had the weight to loose, and the side effect is that he is far more mobile and actually looks healthier as he gets sicker which is just plain weird to watch!

After tests for everything the clinical team have said while the tumour is operable, he isnt as his lung function wouldnt take major surgery, so we are going down the radical chemoradiotherapy route starting this week, no idea what to expect other than hairloss, but have chemo 1 day a week and radiotherapy 5 days a week for the next 5 weeks coming up!


Comments (1)

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  • Picture of SusieQ
    From SusieQ  
    19 September 2016 at 11:00
    Edited on: 19 September 2016 at 12:17


    Thank you for explaining what is going on for you - it's good to meet you here online...

    There has been a great deal of emotional and physical upheaval for both you and your husband over the last few weeks. It sounds a worrying time as you and he waited to see what the treatment plan would be.

    PEG tubes do take some adjusting to - more from the psychological sense often, as you mentioned. Your husband may also be finding the change in how he looks in the mirror to be unsettling. Body image and self image (the way we view ourselves) is often a big factor with cancer.

    However, he may be glad that the PEG tube is there for the duration of the treatment and for his post treatment recovery - so he'll be kept hydrated and have the calories he needs.

    The next few weeks sound like they'll be tiring - for both of you. It might help knowing that the treatment journey has begun - and I know our other online visitors will be empathising with what you're going through.

    Don't hesitate to message Robyn or myself anytime - for support, encouragement and a place to offload...

    Warm wishes


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