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Centre noticeboard: Meetings, research and media events

by centreteam

meetings, research and media opportunities you may be interested in
26 March 2013 at 14:48

Research Invitation


Maggie’s works with many partners to research different aspects of cancer care. This is an invitation to take part in a study organised by Healthtalkonline. The aim is to evaluate a new part of their website focused on living with and beyond cancer. People are invited to take part who are five years or more from a cancer diagnosis (invitation letter below). If you are interested in taking part, or would like to find out more about the study please email or phone 01865 289335

‘We would like to invite you to take part in a study to evaluate a new section on Healthtalkonline ( about living with and beyond cancer. The site has been prepared by staff at the University of Oxford and the DIPEx charity but before we launch it we would like adults (aged 25 or more at diagnosis) who have survived at least 5 years from a cancer diagnosis to tell us what they think about it and what could be improved. Please forward this invitation to people you know who have survived cancer and might like to take part in this evaluation.

The aim of the site is to help people find out about living with and beyond cancer. The site features 27 topic summaries on the issues that may affect long-term cancer survivors. Topics include: physical impacts such as sexual functioning and intimate relationships, psychological impacts such as changed attitudes or personal growth, practical issues such as changes to working life, and other topics such as living with recurrent or advanced cancer. The topic summaries are illustrated with over 250 video and audio clips of people talking about their own experiences of living with and beyond cancer.

Taking part in the evaluation study would involve completing a 2-part online questionnaire. You would first be asked to answer a set of questions about your general attitudes to health information on the internet, before spending up to a week during March 2013 browsing the new website, then returning to the survey and answering another set of questions, this time about the new website. If you want to take part please look at the link here and follow the online instructions.

Alternatively, If you don’t have internet access or would prefer to give us your feedback about the website in person, then we could run one or more focus group discussions lasting up to 2 hours incorporating time to look at the website in a computer laboratory and fill in the questionnaire. Your travel expenses would be refunded and to thank you for your participation in the focus group you’d receive a £20 voucher at the end of the session.’

Thank you.

Registered Office: Maggie's, The Stables, Western General Hospital, Crewe Road, Edinburgh EH4 2XU   Registered Charity Number: SC024414
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