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CLL Life

by Anonymous

19 November 2011 at 15:26

Making a difference, a CLL paper

Hi again thought this may be of interest to all CLLs. I have posted it under group information to. But feel this is of general interest. congratulations to patients and carers who came forward and took part.

This is written in English, not "medi Speak", If you steer away from reading published papers. Try to read this one, you may even wish to print it out for others. it's lengthy but there is a lot of patient input and identification of issues we all experiance from day to day.

It seems all stages of living with CLL can be an emotional rollercoaster. Any information that helps us, those that support us and the medical profession understand what we are going through is important in my book. Maybe In time it may help us and our loved ones gain a little more Psychological support, understanding and compassion when we need it? 

Links to the paper.

The Health Experiences Research Group, website:

The PDF download of the complete paper.

Incurable, invisible and inconclusive: watchful waiting for chronic lymphocytic leukaemia and implications for doctor-patient communication.



Tagged with: Living with CLL

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