Maggie's

See what's happening in the Community

You are not logged in.   Log In

Blogs

What is a blog?

A blog is an online journal. Read other member's blogs or start one of your own and share your thoughts.

Find A Blog

Read our blogs and post your own comments

Meet the team

As well as sharing experiences with our friendly online community, registered members are able to contact our experienced online team. The Centre is staffed during office hours and the online team aim to reply within 24 hours.

Psychologists and experts from other Maggie's Centres and partner organisations also facilitate some group and individual sessions.

Personal Blog

Selected Blog

My and My Lovely Wife's Journey

by Anonymous

27 April 2015 at 13:22

Update on last week, and a mini ran

Well the message seems to have got through, decided to see our Onc and take it from there:

Anyway, saw the new one, with a list;

What about restarting chemo, Yes, but we only have 2 left to try, so will be Carboplatin.

What about a scan? I'll book one

Den will need a line in, as veins are shot, Portacath booked for 5th May.

Need to see a wound care nurse, Pop in next Tuesday, first thing, I'll get it arranged..The BCN scuppered that one, said to see the district nurses, even when I said to the BCN that the Onc promised it.

Onc suggested upping Dens pain meds. She even wrote us out a GREEN prescription, as she said hosp pharmacy would be closed now. However, the chemist Beeeeed that one up, gave us the wrong meds, so have to see the GP on Monday. Good job I tend to over order.

 

So there we are then, getting there, nothing to moan at the Onc about, and quite pleased really.

 

Just the BCN and the chemist, I just can't believe that someone in his position can say. Have these meds, they are not the right ones, but they do the same job. NO they do not, big difference between immediate release and prolonged release which is what Den has. So after checking go back to see him, says yep they are wrong, you need to see your doc for a new script! Pigging Great.



Registered Office: Maggie's, The Stables, Western General Hospital, Crewe Road, Edinburgh EH4 2XU   Registered Charity Number: SC024414
The Maggie Keswick Jencks Cancer Caring Centres Trust is a company limited by guarantee   Company Number: SC162451