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As well as sharing experiences with our friendly online community, registered members are able to contact our experienced online team. The Centre is staffed during office hours and the online team aim to reply within 24 hours.

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by Anonymous

Viewing 20 Entries

  • 19 April 2015 at 08:01

    Robert

    Just to say that Robert lost his long fight with cancer yesterday. It had come back again and caused bleeding a which blocked his trachia. We will ...


  • 08 August 2014 at 23:19

    Home

    Just home after visiting Robert. My heart is breaking for him, he is struggling a bit now. I think he needs some counselling. He just has not come ...


  • 03 August 2014 at 19:37

    Photo

    Just posted a new photo of Robert after the second operation. The new Robert but still Robert.


  • 03 August 2014 at 16:56

    Home

    I'm so happy to say that Robert was allowed home on Friday. I cannot believe how much his wound has healed in a week, like a lizard's tail Robert s...


  • 24 July 2014 at 23:30

    What a couple of weeks

    All went well for a week and then infection set in to Robert's neck. The wound would not heal and the hole just got bigger and bigger. I was beside...


  • 09 July 2014 at 22:00

    Out of IC

    Robert is doing well today. Out of IC and in the ward. He sent me an email tonight saying that he has less pain than he had five days after RD I th...


  • 05 July 2014 at 08:56

    Out of op

    Robert came out of the op at 7.30 last evening. The doctor said that it went well, they think that they have all of it and that Robert coped with i...


  • 03 July 2014 at 08:01

    It's back!

    So so sorry to report that the cancer is back in the back of Robert's tongue and his throat. He got the result of a biopsy last week and has to hav...


  • 17 October 2013 at 14:19

    CLEAR!!!

    I'm so happy, no ecstatic, to report that Robert has been given the all clear! It seems like a miracle after all he has been through but the family...


  • 22 September 2013 at 10:26

    scan result

    sorry so long to post. My husband has been quite ill in hospital and I have been running twice a day every day as well as looking after my grandson...


  • 14 August 2013 at 21:52

    sorry so long

    Hi all, sorry so long to post. Robert is continuing to recover. He is trying very hard to eat but not finding it easy. My husband drove him and fam...


  • 13 July 2013 at 08:36

    Down the other side of the pyramid

    Back home on Monday. Robert has been through hell the last two weeks. They were right about it being worse the two weeks after treatment, it was he...


  • 18 June 2013 at 12:54

    10 days to go

    Robert texted me this morning to say don't call as I usually do as he cannot speak. His mouth had glued up during the night because of all the bloo...


  • 14 June 2013 at 18:43

    update

    I tried to add to my blog from my ipad when down at Roberts but ended up deleting it and the one before. I've just arrived back home now. Hated lea...


  • 21 May 2013 at 10:07

    reatment started

    Robert started the Cetuximab last Monday and second dose yesterday. Noticed some small tissue in his spit at the weekend, hoping that is the tumour...


  • 14 May 2013 at 18:55

    staying positive

    Feeling better tonight. They have cured the MRSA in my sons feeding tube and he goes home tomorrow. He has been put on better pain control with pat...


  • 07 May 2013 at 19:23

    update

    Nothing good to report tonight. We have just come back from spending the weekend at my sons. He was really not well at all. He had a peg inserted i...


  • 23 April 2013 at 16:31

    update

    We have not had good news this week about my son. His chances of survival have dropped to 25% and the cancer has spread to the lymphs on both sides...


  • 09 April 2013 at 20:47

    update

    My son and his family were up to Edinburgh from Thursday until Monday morning. Wonderful to see him but very difficult to see him in so much pain. ...


  • 02 April 2013 at 15:29

    My son

    It started quite innocently in January with my47 year old son saying he had a bad ulcer under his tongue that would not clear up. He had been to th...


Viewing 20 Entries



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